House Bill 999

AN ACT TO ESTABLISH THE MISSISSIPPI PARKINSON'S DISEASE RESEARCH REGISTRY WITHIN THE STATE DEPARTMENT OF HEALTH UNDER THE DIRECTION OF THE STATE HEALTH OFFICER; TO PROVIDE THAT THE STATE HEALTH OFFICER SHALL ESTABLISH AND APPOINT THE MEMBERS OF THE MISSISSIPPI PARKINSON'S DISEASE RESEARCH REGISTRY ADVISORY COMMITTEE TO ASSIST IN THE DEVELOPMENT AND IMPLEMENTATION OF THE REGISTRY, DETERMINE WHAT DATA WILL BE COLLECTED, AND ADVISE THE DEPARTMENT; TO DIRECT THE STATE BOARD OF HEALTH TO PROMULGATE RULES, IN CONSULTATION WITH THE ADVISORY COMMITTEE, TO DESIGNATE PARKINSON'S DISEASE AND IDENTIFIED PARKINSONISMS AS DISEASES THAT ARE REQUIRED TO BE REPORTED TO THE DEPARTMENT; TO REQUIRE THE DEPARTMENT TO RECEIVE AND COLLECT DATA FOR THE REGISTRY ON THE INCIDENCE AND PREVALENCE OF PARKINSON'S DISEASE AND PARKINSONISMS IN MISSISSIPPI AND RELATED EPIDEMIOLOGICAL DATA; TO REQUIRE, BEGINNING JANUARY 1, 2027, EACH MOVEMENT DISORDER CENTER THAT TREATS A PATIENT WITH PARKINSON'S DISEASE AND EACH MOVEMENT DISORDER HEALTH CARE PROVIDER WHO TREATS OR DIAGNOSES PARKINSON'S DISEASE OR PARKINSONISMS FOR A PATIENT TO SUBMIT A PARKINSON'S DISEASE REPORT TO THE DEPARTMENT; TO PROVIDE THAT A PATIENT WHO DOES NOT WISH TO PARTICIPATE IN THE COLLECTION OF DATA FOR THE PURPOSES OF RESEARCH IN THE REGISTRY MAY OPT OUT AFTER AN OPPORTUNITY TO REVIEW THE DOCUMENTS AND ASK QUESTIONS; TO AUTHORIZE THE DEPARTMENT TO MAKE DATA FROM THE REGISTRY, WITH OR WITHOUT IDENTIFIERS, AVAILABLE TO RESEARCHERS THAT HAVE THE APPROVAL OF AN INSTITUTIONAL REVIEW BOARD IN ACCORDANCE WITH REQUIREMENTS OF FEDERAL REGULATIONS; TO PROVIDE THAT ALL INFORMATION COLLECTED PURSUANT TO THIS ACT IS CONFIDENTIAL; TO REQUIRE THE DEPARTMENT TO MAINTAIN AN ACCURATE RECORD OF ALL PERSONS WHO ARE GIVEN ACCESS TO INFORMATION COLLECTED BY THE DEPARTMENT PURSUANT TO THIS ACT; TO REQUIRE THE DEPARTMENT TO PROVIDE NOTICE OF THE MANDATORY REPORTING REQUIRED UNDER THIS ACT ON ITS WEBSITE AND TO PROFESSIONAL ASSOCIATIONS REPRESENTING MOVEMENT DISORDER CENTERS AND MOVEMENT DISORDER HEALTH CARE PROVIDERS; TO REQUIRE THE DEPARTMENT TO SUBMIT TO THE CHAIRMEN OF THE HOUSE AND SENATE PUBLIC HEALTH COMMITTEES A YEARLY PROGRAM SUMMARY UPDATE; TO REQUIRE THE DEPARTMENT, BY OCTOBER 1, 2028, TO CREATE, AND UPDATE ANNUALLY THEREAFTER, THE MISSISSIPPI PARKINSON'S DISEASE RESEARCH REGISTRY WEBSITE WHERE THE PUBLIC CAN FIND INFORMATION RELATED TO PARKINSON'S DISEASE AND THE REGISTRY, THE YEARLY PROGRAM SUMMARY UPDATE, AND ANY OTHER INFORMATION DEEMED RELEVANT BY THE ADVISORY COMMITTEE; AND FOR RELATED PURPOSES.

In the House of Representatives

• Andy Boyd

  Sponsor

l9n doesn't hold this bill's text yet.

In the House of Representatives Jan 16 – Feb 5

1. Jan 16Referred to the House committee on Public Health and Human Services
2. Jan 28Reported from committee in the House: title sufficient, do pass
3. Feb 5Passed the House

In the Senate Feb 6 – Mar 3

1. Feb 6Sent to the Senate
2. Feb 13Referred to the Senate committee on Public Health and Welfare
3. Mar 3Died in committee in the Senate